Patients

“For someone with NF1, the ultimate goal isn’t just treating existing tumors - it’s preventing new ones from ever forming”

Brianna Worden - NF1 patient

“This is exactly the kind of progress you want to see - addressing NF1 at its fundamental level”

LinkedIn comment - NF1 mother

“Surgery for plexiform neurofibromas is often challenging. A therapy that could eliminate or reduce the need for surgical intervention would dramatically improve outcomes for patients”

Dr. Lucas Krauel - Pediatric surgeon

Patient Advisory Board

Kate Kelts

Chair

Director of Patient Engagement at the Children’s Tumor Foundation.

Brianna Worden

NF1 patient

School Counselor and Rare Disease Advocate.

Kunle Taiwo

NF1 patient

Senior project manager at energy sector.

Danielle Bonadies

NF1 mom

Expert in genomic care delivery and co-founder of My Gene Counsel.

Federica Chiara

NF1 mom

NF scientist and patient representative at EMA Committee of Advanced Therapies.

The name "CureAge" was given by our Patient Advisory Board to reflect the courage of patients and their hope of a cure for NF and other peripheral nerve diseases.